During the month of June, eCongress is hosting Optimizing Patient Participation in Clinical Trials, a series of six webinars focused on attracting, engaging, and retaining clinical trial participants. This series is an excellent opportunity to learn from industry experts on important patient-related topics in a convenient format. And it’s all free! The eCongress series is […]
Improving the Patient Experience: A Partnerships 2014 Recap
I arrived in Vegas for Partnerships in Clinical Trials 2014 with great excitement, prepared for both the expected and the unexpected. And I encountered both. On the unexpected front, I found unanticipated but welcome connections and conversations, including an extended dinner discussion about Breaking Bad. On the expected front, I caught up with colleagues and […]
60+ Resources for Digital Patient Recruitment (For NCI Workshop Attendees)
Hello, NCI I-SCORE attendees! This blog post is a companion resource for my March 21, 2014 National Cancer Institute talk, which was titled “Digital Strategies for Patient Recruitment.” You can download slides from the talk here [PDF]. Please keep in mind that the slides include an addendum that was not reviewed during my presentation but […]
Patients as Partners Conference: Get a 15% Discount
“Nothing about me without me.” This phrase was popularized by the Society for Participatory Medicine (which I am a member) to promote greater patient access to electronic health records, particularly as it relates to meaningful use regulations here in the US. But the phrase is often applied more broadly and has become a common rallying […]
The Clinical Trial Patient Engagement Challenge: Can You Build a Great App?
Patient engagement has been hailed as the “blockbuster drug of the century.” Even if you think this statement is hyperbole, it’s hard to deny that patient engagement has great potential to improve healthcare. For example, engaged patients tend to have better outcomes, and perhaps even lower healthcare costs. That’s the conclusion of a growing body […]
Virtual Clinical Trials and Quantified Self (A Guest Post)
A proof-of-concept created by Brock Heinz of Spaulding Clinical could have interesting implications for the future of clinical trials. That’s the topic I explore in a recent two-part guest post on Medidata’s Geeks Talk Clinical blog. In the two-part series I discuss: Why most patients have little interest in clinical trials Why EHRs are not […]
Great Facebook Pages for Research Sites (2013 SoCRA Presentation)
Welcome attendees of SoCRA’s workshop Harnessing Social Media to Advance Clinical Research! I’ve compiled a list of 40+ links and resources as a companion to my talk, which was titled “Great Facebook Pages for Research Sites.” (Download slides here.) This list was created specifically to be of use to research sites on a budget. At […]
Re-imagining Clinical Trial Info in a Patient-Centric Way
You know those moments when you come across a really exciting idea, and you say to yourself, “why didn’t I think of that?!” I had such a moment recently. No, this moment was not inspired by the creation of SnapCat (though I wouldn’t blame you for that assumption, given SnapCat’s brilliance). I’m referring to a […]
The Guessing Game: Predicting Enrollment for Your Clinical Trial
Today’s post is courtesy of Christopher Bound, Senior Data Scientist at Medidata. More information about Christopher is available at the end of the post. -Rahlyn Clinical trial enrollment is the period in drug development that is often cited as the most variable and unpredictable. In today’s clinical world, we are seeing trials become larger and […]
The Most Important P in Patient Recruitment
My last post, The Patient Recruitment Secret (for Sponsors and CROs), has generated quite a bit of interest, including a repost on Applied Clinical Trials. Paul Ivsin also responded with an excellent blog that includes some fascinating data. As Paul points out, “the number of active ‘competing’ trials at a site is not a reliable […]
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